ABOUT US
In 2015, our daughter Anna was diagnosed with the rare progressive neuromuscular disease,
Friedreich's Ataxia (FA). We have dedicated our efforts to raising awareness, advocating, and fundraising for the Friedreich's Ataxia Research Alliance (FARA) to provide funds for the urgent need for research and clinical drug trials.
Our friends, family, and community members have joined forces through fundraising efforts to raise approximately $500,000 for FA research. We THANK YOU for your continued efforts to CURE FA!
Together we will CURE FA!
FARA's Mission
The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.
Our Vision
Hope for ToMORROW is dedicated to raising awareness, funding critical research, and supporting clinical drug trials for Friedreich's ataxia (FA), a rare and progressive neurodegenerative disease. We are a passionate family-driven organization committed to advancing scientific breakthroughs and creating a brighter future for those affected by FA. Through collaboration, advocacy, and community empowerment, we strive to accelerate progress towards effective treatments, providing hope for individuals and families impacted by this devastating condition. Together, we believe that with every step forward, we bring a step closer to tomorrow’s cure.