We are thrilled to announce the date and details for the 5th Annual Hope for toMORROW Fundraiser!
Please join us on Saturday, March 7, 2020 as we continue our efforts to raise funds for Friedreich's Ataxia (FA) research.
We would like to thank ALL those who volunteer, attend, provide sponsorships and silent auction donations - all of which make this event possible. We could not do it without you and continue to be extremely grateful for your love and support. Since 2015, your support of Hope for toMORROW and FARA has raised over $400,000!
Thank you to our gracious hosts, The Bryn Mawr School, who generously and enthusiastically offered to hold our event in their new Student Center.
A special thank you to Manmeet Soni, CFO of Reata Pharmaceuticals and our keynote speaker, who will speak of their efforts and the recent announcement of being very close to the first approved treatment for FA. https://www.reatapharma.com/press-releases/reata-announces-positive-topline-results-from-the-moxie-registrational-trial-of-omaveloxolone-in-patients-with-friedreichs-ataxia/
We hope to see you then and thank you for your continued support!
Stay connected to event updates and contributor recognition on our Hope for toMORROW social media pages:
With gratitude and appreciation,
Kristin and Ben Morrow
Our daughter Anna was diagnosed with FA in 2015, and we quickly learned that Friedreich's Ataxia is a rare genetic progressive neuromuscular disease, affecting 1 in 50,000 people in the US. The symptoms of FA include loss of coordination (ataxia) in the arms and legs, fatigue - energy deprivation and muscle loss, vision impairment, hearing loss, and slurred speech, aggressive scoliosis (curvature of the spine), diabetes, serious heart conditions, including hypertrophic cardiomyopathy and arrhythmias, motor incapacitation and the full-time use of a wheelchair. Most young people diagnosed with FA require mobility aids such as a cane, walker, or wheelchair by their teens or early 20s.
We have become whole-hearted participants and advocates for the efforts of the Friedreich's Ataxia Research Alliance (FARA). FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. www.curefa.org